Despite the smile on my face, being laid up is not fun.
By Jennifer (Smith) Schuler
Do you know someone who is sick or battling an illness right now? Likely, you do. Everything from the common cold and broken bones to arthritis and cancer takes its toll on everyday lives. Each is difficult to deal with, and everyone reacts differently to pain and suffering. In the medical center where I receive treatment for back pain, a quote hanging on a banner reads, “We don’t value our health until we lose it.”
Once I was vivacious and active, and enjoyed running, hiking, kayaking and lifting weights. I worked with personal trainers and took fitness classes. My husband and I were on the go a lot – and working out was part of every day. We even made sure there was somewhere to run on vacation! I expected I would always be moving in one way or another, but 2 years ago my physical capacities and mental strength disappeared. Or so I thought …
One evening in December 2011, I said to my husband, “I don’t feel right. Something’s wrong.” That was the beginning of countless doctor and specialist visits. Diagnosis and choosing a treatment plan also involved multiple tests, x-rays, and scans. I battled endometriosis first. That disease, although not life-threatening, is extremely painful. Whereas each person’s pain level differs, it is not affected by how much endometriosis you have – rather by what it is doing inside your body.
Endometriosis spreads like wildfire and is very difficult to “stamp out.” Following a laparoscopic procedure to remove what could be seen, I endured a round of treatments to keep it “at bay.” Finally, a hysterectomy became necessary. Laparoscopic or not, that surgery can take up to a full year to recover completely.
Although endometriosis causes a good deal of abdominal pain, it can also have a “wrap around” effect and cause lower back pain. When my back pain did not subside several months following my second surgery, I had a new battle – to find out what was going on now.
Dealing with insurance companies, navigating our health care system, and being proactive about your care is difficult. Doctors are typically narrowly focused, and there can be little to no coordination between practices or sensible dissemination of information. You must research, and push your doctors to give you the care you deserve.
I learned I had a degenerative lower disc, an annular tear, and arthritis. So my battles began anew, and I started treatment programs and healing regiments to recover full use of my back and reduce my pain level. Only now am I beginning to feel a little better. I found out my disc tear will heal some (it can take up to 18 months), yet to what extent remains unknown. This means that my future holds hope for healing, but I don’t know what my lifestyle will be like.
Chronic pain affects many facets of a person’s life, and for us meant significant adjustments. I stopped working part-time and my husband works two jobs. We hired a housecleaner and ordered food through a grocery delivery service. Travel, even a short car ride, became too painful for me. Stress aggravated my condition. My husband rearranged his work schedule to drive me to outpatient procedures. We had no care for my son during these times, so he came too.
I was often exhausted – from battling daily pain, caring for my little boy when my husband was not home to help, and coordinating my healthcare. Even daily life became overwhelming to handle.
I felt very alone. It seemed others didn’t understand that my world had turned upside down. If I talked about it, I usually received platitudes or the “at least you don’t have cancer” talk – even judgment about my medication and treatment plans. I was ready to give up, and for a time went to a dark place within that I was not sure I would come back from.
Finally, one specialist convinced me to see a chronic pain therapist. This started my healing process. Over several months, and lots of pushing on her part, I finally emerged from my isolation and began reaching out into the world around me. She taught me how to reconnect with those who could be supportive; to let go of stressful, toxic relationships; and to make new friends and get involved in my community. She showed me how to embrace life again, and slowly my vitality began to return. That awakening also helped my physical healing which evolved to include massage, dance classes, and yoga sessions.
Reaching out and plugging back into life helped me. I am not completely healed, and still have bad days physically and emotionally, yet for the first time in over 2 years I have a glimpse of life on the other side of chronic pain. Hopefully, that will include more pain-free days and an active lifestyle. I am also able to look back at my physical pain and emotional despair, and see that although I experienced a trying time in my life, there were hidden blessings in the midst of my struggles. Ironically, dealing with chronic pain, and finding myself “off the merry-go-round,” has brought healing and clarity to my life:
*I know who my friends are. Unfortunately, there are few people who can handle supporting someone who is sick for a very long time. I am thankful for my best friends, Jen (our blog panel member) and Karen S., who have carried me through this ordeal.
*I can do more than I think I can. My husband says I get more accomplished in a day than women who don’t have chronic pain.
*I was forced to slow my life down and sit on the sidelines as an observer. One good thing this has affected is spending time with my son. Sometimes I worry about him dealing with the family dynamic of chronic pain, yet my husband is quick to point out how caring and empathetic he is at such a young age. I have been able to slow down time and watch him grow – inch by glorious inch!
*I discovered hidden talents. My doctors said no more running. This is hard for me to embrace (what, no more half marathons?!), yet I learned to dance which my doctors encourage to build core muscles and keep joints moving without impact!
*I have grit. It takes great mental fortitude to handle over 2 years of ongoing pain and still function with some normalcy!
Are you or someone you know dealing with chronic pain? Please share any hidden blessings you have found amidst the pain!